Paper Ideas: Qualitative Research and ELSI

From BrothersBrothers
  1. Public Opinion Polling and Normative Claims
    • The problem of democracy, the tyranny of the majority
  2. This is clearly an instance of is not leading to ought.
    • But my larger concern is not that is cannot lead necessarily to ought, but rather than when "is" is intended to inform the "ought", we need a framework for understanding how that translation should be made
  3. The growth of social scientific methods and virtue ethics both seemed to have grown out of the same discontent with principlist ethics.
    • Compare some of the critiques waged by both against that approach
  4. Virtue ethics provides a way to understand how empirical data lead to practice.
  5. The messages that go along with patient preferences research are consequentialist, and based on threats that objections to research approaches could lead to setbacks in research. The solution is engagement for the sake of transparency, which framed as "respectful engagement", and with the understanding that approaches not found to be acceptable to public audiences will not be pursued, which is framed as preventing consequences.
  6. Qualitative research can be used to get at underlying beliefs, and there are a number of ways to do that. It is possible (references?) that people do not volunteer or are even aware of the beliefs that underlie their preferences. It is also possible that people respond differently to questions when they perceive that their responses are going to drive policy, and when that happens they are likely going to err on the side of control.
  7. Community engagement is a self-fulfilling value - We ask people whether they want power in decisions, which we assume they do because we are asking.